title: Patient Reported Outcomes Dataset for NF1-Associated Plexiform Neurofibromas funder: NTAP creator: Jin-Shei Lai license: UNKNOWN species: Homo sapiens studyId: syn4939888 subject: Patient Reported Outcomes Neurofibromatosis Quality of Life dataType: survey data clinical keywords: Patient Reported Outcomes PRO plexiform neurofibroma quality of life HRQOL questionnaire NF1 survey data accessType: Public Access contributor: Sara Gosline diseaseFocus: Neurofibromatosis type 1 datePublished: 2018 manifestation: Plexiform Neurofibroma dataUseModifiers: General Research Use measurementTechnique: questionnaire
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