Development of a needs-based quality of life Patient Reported Outcome measure specific to patients with NF1-associated pNFs

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Created By Thomas Yu thomas.yu

grantDOI: https://doi.org/10.54464/pc.gr.147663
studyName: Development of a needs-based quality of life Patient Reported Outcome measure specific to patients with NF1-associated pNFs
dataStatus: Data Not Expected
initiative: Patient Reported Outcomes
studyLeads: Stephen McKenna
studyStatus: Completed
diseaseFocus: Neurofibromatosis type 1
institutions: Galen Research
fundingAgency: NTAP
manifestation: Plexiform Neurofibroma
relatedStudies: syn4939888 syn4939912 syn35627501 syn51227166
studyFileviewId: syn19554989
Welcome to the NTAP Development of Needs-based Quality of Life Patient Reported Outcome Forum
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