dataType: surveyData grantDOI: https://doi.org/10.54464/pc.gr.147664 studyName: Development of a Child Neurofibromatosis Type 1 Health Related Quality of Life Measure dataStatus: Available initiative: Patient Reported Outcomes studyLeads: Nancy Swigonski studyStatus: Completed diseaseFocus: Neurofibromatosis type 1 institutions: Indiana University fundingAgency: NTAP manifestation: Plexiform Neurofibroma relatedStudies: syn51730549 syn51356860 syn4939888 syn26957643 studyFileviewId: syn51468352 Welcome to the NTAP Child Neurofibromatosis Type 1 Health Related Quality of Life Measure Forum syn34271590 syn51468352 syn9922960
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